Current through Register Vol. XLI, No. 50, December 13, 2024
Section 64-81-5 - Confidentiality5.1. Only those persons employed by the Bureau for Public health dealing specifically with the birth defects registry shall have access to the database. All others requesting data from the registry shall complete a request form detailing what information is requested and how it shall be used. The person requesting the information then shall be given compiled data with no identifying information attached.5.2. Anyone who obtains confidential information while implementing W. Va. Code §§ 16-40-1 et seq. may disclose it only to reporting sources, persons demonstrating a need that is essential to health related research or care of persons with congenital anomalies and abnormal conditions, or as required or permitted by law.5.3. Anyone who obtains confidential information while implementing W. Va. Code §§ 16-40-1 et seq. shall provide a written statement to the commissioner that he or she fully understands the confidentiality of the information and will maintain it.5.4. The commissioner may publish reports with statistical data relating to birth defects and other adverse birth outcomes that do not in any manner identify individual patients or individual sources of information are permissible, provided that the data is not for such small geographic areas or in categories with few entries that together with other publicly available information, the patients could be identified.