10-144-730 Me. Code R. § 2

Current through 2024-51, December 18, 2024

Section 144-730-2 - Data Requirements and Exclusions

DRVS shall report Maine Cancer Registry data and data related to the registration of vital statistics, including identifying data or protected health information (PHI), to the MHDO, in accordance with this rule.

A.Cancer Registry Data Elements:

1. Reporting Facility/Physician

2. Registrant's Name (first name, middle initial, last name, and, if applicable, maiden name)

3. Date of Birth

4. Address at Diagnosis; including

a. City or Town of Residence

b. County of Residence

c. State of Residence

d. Zip Code

5. Sex/Gender

6. Social Security Number, if available

7. Race

8. Attending Physician

9. Referring Physician

10. Date of Diagnosis

11. Topography of Cancer (ICD)

12. Morphology of Cancer (ICD)

13. Usual Occupation 14. Usual Industry

15. Stage of Disease at Diagnosis (AJCC coding system)

16. Patient's Mailing Address

17. Date of Admission

18. Laterality

19. Grade

20. Spanish/Hispanic Origin

21. Diagnostic Confirmation

22. Summary Stage

23. Date of First Course of Treatment (when available in the medical record)

24. Type of First Course of Treatment (when available in the medical record)

B.Vital Statistics Birth Data Elements:

1. Registrant's Name (first name, middle initial, last name, suffix and, if applicable, maiden name)

2. Date of Birth

3. Sex/Gender

4. Race

5. Hispanic Indicator

6. Event Location

a. City or Town

b. County

c. State

d. Zip Code

7. Registrant's Parent(s)

e. Last Name (including maiden name, if applicable/available)

f. First Name and Middle Initial

g. Date of Birth

h. Sex/Gender

i. Race

j. Hispanic Indicator

k. Residence City or Town

l. Residence County

m. Residence State

n. Residence Zip Code

C.Vital Statistics Death Data Elements:

1. Registrant's Name (first name, middle initial, last name, suffix and, if applicable, maiden name)

2. Date of Birth

3. Sex/Gender

4. Social Security Number

5. Race

6. Hispanic Indicator

7. Residence City or Town

8. Residence County

9. Residence State

10. Residence zip

11. Event Location

a. City or Town

b. County

c. State

d. Zip Code

12. Cause of death ICD-10 code

D.Interstate Data Exchange Exclusions. The Maine Cancer Registry is a signatory to the North American Association of Central Cancer Registries' National Interstate Data Exchange Agreement which prohibits re-release of interstate exchange only cases. Data which is from interstate exchange only cases will be excluded and not transferred to MHDO.

10-144 C.M.R. ch. 730, § 2